by Linda Thunn, PT, DPT, DMG CRS Physical Therapist

Life with a special needs child or adult can be a complex, scary, and amazing journey full of ups and downs, triumphs and disappointments that affect the whole family. A good thing to remember is to think about the long-term outcome of a goal rather than just the immediate outcome. You may want your child to walk or talk, but that may not be possible. Therefore consider what can be done to support them in their effort to be the most independent and to find joy in their life.

Caring for a child with or without special needs is a marathon, not a sprint. You won’t always do the right thing, but with good intentions you will be on the right path. Below are three basic tips to improve wellness for the whole family.

 

1. Breathe

We know we need to eat right and exercise, but when you have a special needs child, you may not have the time to do the “right” things for yourself. Incorporating easy wellness activities into your daily life could make all the difference. The act of deep breathing with intention can decrease your cortisol levels thereby decreasing stress levels. Deep breathing for a few breathes, 3 to 5 times a day, takes practice to become a habit and to be effective.

Try it right now! Sit down in a chair with your feet flat on the floor. Slowly breathe in through your nose, counting to five (using your fingers to count will slow your breath). Hold your breath for two seconds, and exhale through your mouth to the count of five. The goal is to have your midsection expand during the inhale breath and soften during the exhale breath with your shoulders remaining still. Repeat this exercise three times. As you continue this practice you can add repeated positive thoughts while you breathe. And as you improve, you will be able to incorporate this in your walking, standing and exercising.

 

2. Play

Please take your therapists advice and include their information into typical activities of daily living. Whether you are working on sitting or walking with your child, you are promoting their independence. Ultimately all therapies are to promote progression to a less dependent adulthood. Please do not forget to play. Simple repetitive activities that are common during functional play builds pre-literacy, motor, and thinking skills. Whatever your age or skill level, everyone likes to participate if they are having fun. Arizona has a variety of resources for various skill levels, including adaptive parks and sports. Also family based physical activity increases the health and wellness of your family unit.

 

3. Community Resources

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An insider’s guide on making friends and merging worlds

by Tre’Shawn Rizo, Administrative Assistant at DMG CRS

In the ninth grade I was fortunate enough to meet my best friend Daniel in biology class. At the time I didn’t know he was, as he likes to put it, “different.” It was later in the day that he let me and a few others know about his autism. But that didn’t matter to me. From the moment I first noticed Daniel, I knew he was a guy I wanted to get to know. You see, earlier that day in biology our teacher used the expression “pull yourself up by your own bootstraps.” I didn’t think anything of it, but Daniel quickly raised his hand and said, “Hey Mr. McWilliams, that’s physically impossible to do. So I’m confused by your statement.” Watching my teacher get red in the face and fumble over how to respond was priceless. During lunch that day I decided to find Daniel and sit next to him. And after an awkward introduction and eleven years I’m quite pleased to still call him my best friend.

Over these past eleven years of having an autistic best friend, and in honor of Autism Awareness Month, I want to share my top three tips for interacting with someone who has autism. But first, let’s start with some definitions just so we are all on the same page.

Autism: A neurological disorder characterized by repetitive behavior, difficulties communicating, and problems establishing and maintaining relationships.

Autism Awareness: A movement about spreading awareness and acceptance of people on the autism spectrum.

Neurotypical: A person who doesn’t display atypical thought patterns or behaviors.

Stimming: Self-soothing, repetitive body movements which autistic people do in response to over-stimulation or emotional stress. Common ‘stims’ are rocking back-and-forth motions, hand flapping, and arm and leg rubbing.

Now that that’s out of the way, we as neurotypicals have a way of being weird or awkward when it comes to interacting with someone who falls outside the norm. However, they are people just like we are. The only difference is they think differently. So here are three tips that will help you develop friendships with people on the spectrum.

Tip 1: Be Kind.

It should go without saying, and this applies no matter who you are talking with, but be kind and respectful. A little kindness and respect can go a long way. People with autism are often bullied, teased or talked down to. Do not assume their mental capacity is based off their condition. The two do not always go hand in hand. So do not talk down to or baby them.

Tip 2: Be Patient.

When talking, people with autism may experience an eruption of emotions and misunderstandings. Because of that, when processing social cues, they might miss something and accidentally say something that may be taken as stupid, mean, or offensive. This tends to hinder the formation and maintenance of lasting relationships. But this can be avoided by helping to bridge the gap of misunderstandings. Keep in mind that without the physical emotional cues to guide their responses like neurotypicals do, they are left with just the words. This sometimes can make an awkward experience.

To get a sense of what this is like, try closing your eyes the next time somebody is talking to you. It’ll give you an idea of how much they are missing out on. It is said that over half of all communication is nonverbal. If you’re the neurotypical in the conversation, it’s your job to make sure you are clear in your meaning. If you feel offended by what they may have said, instead of showing your offense through your facial expressions, kindly verbalize that they have offended you. You will get an apology a lot faster than making a face at them that they may not pick up on or understand.

Tip 3: Pay Attention.

Pay attention to their body movements for signs of stimming. This happens when they are experiencing an excess of emotion or sensory stimuli. It isn’t always bad, and it isn’t always good. It just is. Many people with autism have free floating anxiety even when they are happy, and stimming helps keep that under control. If you see that they are moving around more than usual, ask if they need anything. Most of the time they will tell you what they need, and the tiniest gestures go the furthest.

I know that these tips won’t make the stigma surrounding people on the spectrum go away in a day, but it’s a start. Kindness, patience and paying attention are a good start to making new friends and merging these worlds together.

DMG CRS conducts comprehensive assessments for every new patient

By Nancy Kleinwachter, LPN at DMG CRS Comprehensive Assessment Clinic

DMG CRS is the largest Multi-Specialty Interdisciplinary Clinic (MSIC) in the state of Arizona and designed to meet the unique healthcare requirements of special needs children. Our staff are committed to coordinating multiple appointments for our patients and on the same day when possible. To do this, our team of experts first conducts a comprehensive assessment of each and every child to determine the specialty referrals needed to give them the best quality, complete care.

Comprehensive assessments are such an integral part of the DMG CRS Difference that we have a special clinic, the Comprehensive Assessment Clinic (CAC), with a team of Pediatric Nurse Practitioners highly trained in taking care of special needs children. This first visit is so important for the child, their family and for DMG CRS staff. During this visit the child is examined from head to toe, all medical and historical records are reviewed, and DMG CRS staff have in-depth conversations with the family. This is all done to create a clear understanding of the patient’s needs as well as to address any parental questions or concerns. It is during this assessment when the provider will determine what referrals are needed.

Once the assessment is complete and the referrals have been made, our team of medical professionals will ensure the referral appointments are scheduled. Not only will we ensure the referrals have been made and the appointments have been scheduled, but we also follow up to confirm the appointments have been kept. The CAC staff can even assist with coordinating transportation to appointments, getting in touch with a patient advocate to help with school concerns or connect families with a social worker.

Another great thing about DMG CRS, is that because there are so many specialties under one roof, all medical records are in a single electronic medical record (EMR) and is accessible to all DMG CRS medical providers. And even if referrals are made to a specialty outside of DMG CRS, we will make certain that we have a copy of the visit notes so that we can be aware of what has been done.

At DMG CRS, we pride ourselves on our ability to coordinate care for our patients.
DMG CRS has over 25 pediatric medical specialties onsite.

We also have lab and X-ray in the building in case it is determined that the child needs those services as well. Our Child Life Specialists are great at making those experiences easier on the child. And for those patients where distance is an issue, we offer telemedicine and outreach clinics in San Carlos, Show Low, Globe, Whiteriver and Prescott Valley.

Once the CAC appointment is done, a packet of information is given to take home, which includes the child’s plan of care, a copy of all referrals made, a list of scheduled appointments and direct phone numbers for any follow-up questions or concerns. Our goal is for the family to walk away from the appointment confident in DMG CRS’s ability to provide the best comprehensive healthcare for their child with special needs and that no stone was left unturned.

If you have any questions for the CAC team, please give us a call at 602.914.1520 x6144.